I am taking a little break from the Make A Wish trip posts to bring you an update on Baby Beth. I am also including pictures of her back, because I want you to understand how serious the situation is!
So Beths back likely looked more like Christella, Angelina and Jude's. I don't know if you remember the pictures but the "bump" or Myelomeningocele was actually filled with fluid (Cerebral Spinal Fluid) and like a bump that stuck out of the back. Because they finally gave Beth a VP shunt, her myelomeningocele collapsed and was no longer filled with the mass fluid that it had been.
Last Monday (April 26) the doctors decided that they would be able to help Beth by inserting a temporary "plate" of some sort in her back where her Myelomeningocele is. They are not able to close her back. Typically in the USA and most developed nations they would close the back within days of the baby being born. We aren't sure why they can't close Beth's back. Perhaps because she doesn't have enough skin? Or they don't have the expertise to be able to do the repair. ?
Its a miracle that Beth is even alive. When I heard that they were doing surgery I had a glimmer of hope but putting in a temporary "thing" isn't really doing her any good. (In my humble, non medical, not an expert opinion!) It was just allowing a greater chance for her to get an infection!
And guess what happened?
By last Friday they were emailing that she has a fever and an infection. Its been a Holiday in her country since and we haven't had an update since last weekend.
Beth might already have died.
That's the reality of the situation.
She needs prayers.
She needs a FAMILY.
She needs a PLAN to get HERE fast.
She isn't going anywhere without a family.
Her country doesn't value disabled children. But if she had a paper ready family that was pushing for her to get here, people could make things happen! SO please please pray for Beth and please consider adopting Beth and please consider helping to spread the word about her.
I am sorry if these pictures have upset you. I want you to grasp the reality of the situation for this beautiful baby. And yes, if we had the money and were home study ready- I would be there now with her. I didn't know much about Spina Bifida when I adopted Angelina. I had to learn through the years and its not scary and the children with SB are WONDERFUL. They are magical and special and God's children. Very intelligent, awesome communication skills, many go on to college and there are even surgeons who have Spina Bifida!
Isn't she just beautiful?
Please help.
Subscribe to:
Post Comments (Atom)





1 comment:
She is beautiful. And I'm with you, if we had the money and were homestudy ready, we would bring her home. Every time you post her picture, my heart just aches for her. I'm praying.
Post a Comment